At AsIAm, we are expanding our work in the areas of Policy and Community Support, to better serve the autism community in Ireland. In the coming months we will mount a number of surveys to get an insight into the autism community’s wants and needs on a variety of issues and topics. Sometimes we will write a survey in collaboration with another organisation, but most of the time we will be analysing and using the survey’s data ourselves.
If you would like to take part in any of our surveys and support us in our work, please find our currently open surveys below. We will update this page periodically, and if you have any questions or comments, email us at firstname.lastname@example.org.
Autism ID Card Consultation
In recent weeks we have received a very large number of queries in relation to Autism ID Cards. Many families have availed of this service from Autism Ireland and are concerned about the future of a programme which they have found to be beneficial.
We want to ensure that the service we would offer meets the needs of the community:
~ What purpose would you like the card to serve? How and why would you use it?
~ What would make a card cost effective for families?
~ What requirements should be placed on organisations who agree to honour the card?
~ How can the card be protected from misuse or abuse?
~ How can we ensure that the card fully honours the voice of the cardholder and is fully GDPR compliant?
We invite the autism community in Ireland to complete our survey on Autism ID Cards, linked here. We also invite businesses across Ireland who were affiliated with Autism Ireland’s ID Cards, who are affiliated with a similar disability programme, or who have ever considered signing up to such a programme, to complete our survey.
With the data collected, we will evaluate from the results what is the best way forward for an autism identity/communication card in Ireland. We need your help with this, so please take two minutes to complete our survey and share.
Who is invited to participate?
Autistic people in Ireland, their family members, and businesses across Ireland who were affiliated with Autism Ireland’s ID Cards, who are affiliated with a similar disability programme, or who have ever considered signing up to such a programme.
The survey is hosted on SurveyMonkey and will close on 29th April 2019 at 5pm. If you have any questions about the survey, you can email us at email@example.com.
Adult Autism Diagnosis
In partnership with Core Clinical, we invite autistic people with a formal adult diagnosis of autism/autism spectrum disorder/Asperger’s Syndrome to complete our new survey “Stress, distress, and mental illness: how can a new adult autism assessment and intervention service best support you?” Please take a few minutes to complete our survey and share.
What’s it for?
Core Clinical is a specialist multidisciplinary team providing assessment, diagnosis, intervention, therapy and support to adults with neurodevelopmental conditions. These include Autism Spectrum Disorder (ASD) and Attention Deficit Hyperactivity Disorder (ADHD). Core Clinical and AsIAm wish to investigate what the current process of getting an autism diagnosis as an adult in Ireland is like.
You can learn more about Core Clinical in our interview here.
Who is invited to participate?
This is a call out to autistic adults who attained a diagnosis of autism, autism spectrum disorder (ASD), or Asperger’s Syndrome from the age of 18+ in Ireland.
(We in AsIAm are currently using the term “autism spectrum condition (ASC)” more in our communications instead of the word “disorder”. However, we are aware that many in our community are diagnosed as having ASD by clinicians and the medical community, and since that is what this survey is investigating, we here are using the diagnostic label. This is also why we include diagnoses of Asperger’s Syndrome in our call out, to include people who were diagnosed with AS before the publication of DSM-V.)
If you have any questions about the survey, please email firstname.lastname@example.org.