AsIAm is committed to protecting your privacy. We look after your data in a way that follows data protection laws, including General Data Protection Regulation (GDPR). This Privacy Notice explains how we collect, use, disclose, and protect your information when you participate in this survey.
Data is collected to:
• Deliver AsIAm One Stop Shop services for individuals
• Inform the development of AsIAm One Stop Shops for the autistic community
• Monitor the programme to ensure quality service delivery
• Demonstrate the positive impact of the service
We collect the following categories of personal data:
• Identity data: full name/ date of birth
• Contact data: email/ phone number/ address
• If the service user is under 18, name and contact details of parent/ guardian
• Communications data: Your preferences for what we contact you about
• Special category data: proof of autism diagnosis/ support needs/ where relevant to the delivery of the service – additional health data, ethnic background, or sexual orientation may be recorded (if you choose to disclose this information).
• Other personal information you choose to provide may be recorded to support the delivery of advice/ support.
• Your opinions may be recorded through feedback forms.
The information you provide will be used for the following purposes:
• To provide you with information about any services or events you register for.
• To deliver One Stop Shop advice/ supports arising from your consultation.
• To provide you with updates on the One Stop Shop (if you opt-in)
• To add you the AsIAm mailing list (if you opt-in).
• To support monitoring and reporting purposes.
We process your data based on the following legal grounds:
• Legitimate Interest: AsIAm has a legitimate interest in processing your data for the purpose of delivering AsIAm supports and services.
• Consent: For additional purposes such as mailing-lists, additional consent will be obtained.
AsIAm implements appropriate technical and organizational measures to protect your data from unauthorized access, alteration, disclosure, or destruction. Personally identifiable information is stored securely and is only accessible to authorized personnel on a need-to-know basis.
• Your personal data will only be shared with people within AsIAm who require this information for the purposes listed above.
• Your data will not be shared with any third parties for marketing or commercial purposes.
• AsIAm may share aggregated (combined), non-identifiable data with the HSE, or other third parties for advocacy and reporting purposes. In these cases – your information will be anonymous.
We will retain your personal information only for as long as it is required. The period of retention will vary depending on your communications preferences. If you provide contact details for newsletters, we will retain this information until you opt out.
Under GDPR, you have the right to:
• Access your personal data.
• Rectify inaccuracies in your personal data.
• Withdraw consent at any time (which will not affect prior lawful processing).
• Request deletion of your data, subject to legal obligations.
• Restrict processing in certain circumstances.
• Lodge a complaint with the Irish Data Protection Commission if you believe your data is being misused.
To exercise your rights, please get in touch using the contact details in section 11 below.
The following services may be used to facilitate the collection of your information:
• Radius (remote server provider)
• Microsoft One Drive & Share Point
• Microsoft Forms
• Calendly
• Eventbrite
• Mailchimp
If you have any questions about this Privacy Notice or how your data is used, please contact our Data Protection Officer:
• By Post: Data Protection Officer, AsIAm, 17-21 Temple Road, Blackrock, Co. Dublin, A94 DN40.
• By Email: rachel.gilliland@asiam.ie
• By Phone: (01) 445 3203
